I spent many a sleepless night searching desperately on the Internet for answers. This is what I began to find out:

             https://dipg.org/dipg-facts/what-is-dipg/

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What is a Diffuse Pontine Glioma (Brainstem Glioma)?

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A diffuse pontine glioma or brainstem glioma is a high-grade, or malignant, tumour. This type of tumour arises in the glial the lowest, stem-like part of the brain, which controls many vital functions.
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Diffuse pontine gliomas accounts for approximately 300 new cases diagnosed in the United States each year and 40 in the UK.
 

The median age at diagnosis is 5 to 9 years old, and these tumours occur with equal frequency in boys and girls.
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All children diagnosed with the disease die, typically within 3-18 months.